a Although the Dutch version of the eHIQ was used in this study, for the purpose of this paper the items from the standard English-language version of the eHIQ are shown.
b This item was reverse scored.
We identified the 3 highest- and lowest-scoring items of the 2 subscales. The highest-scoring items on Information and Presentation were trust in the provided information (mean 4.06, SD 0.69), ease of understanding the information (mean 4.06, SD 0.81), and use of understandable language in the portal (mean 4.04, SD 0.80). The lowest-scoring items were about whether the images were distressing (mean 3.44, SD 0.79), tips were useful (mean 3.27, SD 0.94), and website imagery was appropriate (mean 3.27, SD 0.71). The highest-scoring items on Motivation and Confidence to Act were on better understanding personal health by using the website (mean 3.86, SD 0.74), being encouraged to take health-beneficial actions (mean 3.85, SD 0.93), and confidence to take action (mean 3.56, SD 0.84). The lowest-scoring items were on whether the website would be consulted to make a decision about health (mean 3.38, 0.95), gives confidence to discuss health with other people (mean 3.37, SD 0.94), and gives confidence to explain health concerns to others (mean 3.36, SD 0.91).
To examine whether the perceived usability of the patient portal was positively associated with self-efficacy, we calculated a Pearson correlation. There was a large, positive, significant correlation between the subscale Information and Presentation and Motivation and Confidence to Act ( r 345 =.77, P P<.001). This finding was in line with our expectations.
This study aimed to investigate patients’ attitudes toward a patient portal specifically designed to communicate laboratory test results, thereby helping patients to take an active role in managing their own health. Findings showed that the usability of the patient portal, assessed by the subscale Information and Presentation of the eHIQ, was rated positively. This suggests that study participants found the patient portal easy to use, considered it trustworthy and appropriate, and found the provided information easy to understand. The self-efficacy of patients using the patient portal, indicative of patients’ motivation and confidence to act on the presented information, also received a relatively high score, but this score was just below the set cutoff score that we used to determine whether patients’ attitudes toward the portal were positive. In addition, as expected, we found a positive association between the portal’s usability and patients’ self-efficacy [ 30 , 31 ]. Altogether, the findings show that patients were generally positive toward the portal, but it is important to identify opportunities to further optimize patients’ self-efficacy, as this affects a person’s intention to act on the information.
The usability of the patient portal, which includes patient understanding, was rated positively. This is important because, if all patients are to receive their test results automatically online, the portal needs to be easy to use and provide information that is understandable for all. The high score on usability is in line with previous research examining patient portals with laboratory test results [ 35 - 37 ]. The lowest-scoring items on usability were on provided tips and imagery, which we considered less relevant for this patient portal, as the portal does not include tips or imagery. Therefore, the actual usability of this particular patient portal might have been higher than this study found it to be. As no sociodemographic information was available, we could not determine whether the results differed by subgroup (eg, age, sex, level of health literacy). Future studies should examine whether the patient portal with laboratory test results is usable for all.
As mentioned above, the self-efficacy of patients using the portal—measured with the Motivation and Confidence subscale—was slightly lower than the set cutoff score. Considering that this was, to our knowledge, the first study of a patient portal to use the eHIQ, no official cutoff was available, and this limits our ability to compare this study’s self-efficacy score with other studies’ results. Moreover, to the best of our knowledge, no studies have examined patients’ self-efficacy with questionnaires other than the eHIQ after being presented with online laboratory test results. Both usability and self-efficacy affect an individual’s intention to follow up the test result [ 29 , 38 ]. Therefore, it is important that these factors be evaluated and improved where needed. We discuss some potential avenues for improvement below.
One potential area to improve is the use of reference values when communicating laboratory test results. Currently, a visual presents how the numeric value of the laboratory test result relates to a reference value that takes sex and age into account (when relevant). This standard reference value might, however, be less relevant for individuals with a chronic condition (eg, diabetes). Research has now shown that using reference values that are clinically appropriate (ie, personalized) can help to improve patients’ understanding and decrease negative responses to the results [ 39 ]. Replacing standard reference values with clinically relevant values will not be relevant for all laboratory tests (eg, not for sexually transmitted infection tests), but might be useful for other tests (eg, glucose, kidney function), and future studies should investigate this possibility.
A second potential area to improve is the understanding and effective use of laboratory test results by providing additional information [ 40 ]. One study showed that 50% of patients using a portal accessed additional, external information related to the diagnostics test results [ 36 ]. Adding additional information, however, might also increase the complexity of the presented information and this, in turn, might decrease understanding and limit a patient’s ability to extract the relevant information [ 41 ]. This highlights the need to find the right balance between providing enough information and information overload. Adding links to additional information might provide a solution, by making more in-depth information easily available to those interested, while not running the risk of overwhelming patients with large volumes of text.
A third potential area to improve relates to patient portal use being predicted by perceived usefulness and perceived ease of use [ 38 ]. This emphasizes the necessity to involve end users when designing patient portals to ensure that the portal is perceived as useful and easy to use [ 42 ]. The Saltro patient portal was developed in close collaboration with both patients and health care providers, thereby attempting to address the end users’ needs and assure usability. Nevertheless, it is important to continually evaluate these aspects to ensure that they are adequately met and to identify areas for future improvements.
Even though communicating laboratory test results online can have some advantages, such as improving clinical efficiency and improving accessibility of results, there is a limited number of studies on the use of such systems [ 41 , 43 ]. This study, therefore, adds to the limited existing literature base. Some limitations, however, also need to be discussed. First, the response rate was low and, consequently, there is risk of self-selection bias. A low response rate, however, does not automatically equal low study quality, as a low response rate is only problematic when it affects the sample’s representativeness [ 44 ]. Still, 97.45% (13,553/13,907) of the patients did not complete the study questionnaire. This high rate of noncompletion precludes generalizing whether the patient portal display and explanation of results are acceptable and informative for all patients.
Second, as mentioned above, no sociodemographic information was available from participants. This restricted us from doing subgroup analyses to see whether attitudes regarding the portal were dependent on these characteristics. Limited research is available on whether portal use and acceptance differ between groups. One study did find that portal use was influenced by age, presence of a chronic illness, and eHealth literacy level [ 39 ]. Further research into potential group differences is necessary, and such information can be used to fine-tune the portal to make it acceptable for every user.
Third, in some cases, it is important that patients act on the test results presented in the portal. Even though self-efficacy can be a valuable predictor of action [ 45 ], it is still a proxy of action and it would be interesting to study the effect on actual behavioral activation.
A strength of this study is that patients completed the questionnaire immediately after they accessed the portal and viewed their results, thereby limiting recall bias and giving an accurate picture of patients’ attitudes toward the portal.
Study participants evaluated the usability of Saltro’s online patient portal communicating laboratory test results positively. Nevertheless, it should be noted that the low response rate precludes generalization of the results. Patients’ motivation and confidence to act on the presented information also scored relatively high, but future research should examine ways to further optimize patients’ self-efficacy to increase an individual’s intention to act on the information. In addition, it is important to determine potential group differences in portal use and acceptance. Overall, study participants had a positive attitude toward the patient portal and the portal potentially can help patients take a more active role in managing their own health.
We would like to thank the patients who were involved in several phases of the development of the portal and this study. We also thank the professionals and employees of Saltro who contributed to the development of the portal and this study.
eHealth | electronic health |
eHIQ | eHealth Impact Questionnaire |
GP | general practitioner |
Conflicts of Interest: ETK, RTS, AG, and AV are employees of Saltro, where the portal has been developed and implemented.
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Internal and external Quality Assurance Programs are carried out regularly to assess all laboratory operations to ensure complete confidence in providing laboratory result reporting, efficient laboratory services and laboratory functionality. A full laboratory and radiology information system has been installed and is effectively used ...